I spent 5/11 – 5/25 in Life Care Center of Nashoba Valley, a
rehab facility in Littleton, 15 minutes away from our home here in Stow. They take physical and occupational therapy
very seriously there, and I was able to make good progress in recovering my
ability to walk and maneuver. I had a
number of appointments in at Beth Israel that advanced the cause of my
participating in a clinical trial of a Multiple Myeloma vaccine. All looked fine for a normal release to home
and Barbie’s care.
Then Thursday, 5/23, Barbie fell on the tennis court and severely
broke her left wrist.
EMTs brought her to Emerson Hospital in
Concord Massachusetts where she received excellent and timely care from skilled
ER doctors. They performed a process known as reduction, where the hand is
suspended from the fingers while someone gently massages the bones back into
proper alignment. A solid cast is affixed to preserve the alignment until
surgery. This was done while Barbie was receiving quantities of pain medicines which
managed to affect the entire body except the incredibly painful wrist! A dissociative drug, ketamine, provided her
with the first truly hallucinogenic trip of her life. Son Brian was there to
help interface with doctors at Emerson and those his wife Bridget was lining up
to perform surgery in Boston the following day.
Turns out Barbie managed to break both her radius and ulna as well as some of the smaller bones in the wrist
so it is a pretty complex fracture of an important part of the body for anyone, even more so for someone who
loves to play the piano! Brian took her from Emerson to his home in Boston, then delivered her for surgery
Friday morning. Apparently, the surgery went well, but Barbie was still asleep when the surgeon came by to
deliver the post-surgery report. Needless to say, Barbie was in major pain and the pain killers struggled to keep
up with the intensity.
Saturday Andrew and Gabriel (age 4) drove down from Vermont
to Jamaica Plain to pick Barbie up. Brian’s
son Brendan (age 6) came along as a playmate for Gabriel. Then they drove to Littleton to pick me up,
who was being discharged into what was intended to be a stable home
environment. Barbie was pretty well
incapacitated, but Andrew provided all the care and feeding required for both
of us. In addition, he did a number of
chores around the house that had piled up in my absence, such as putting in
screens and getting the tractor into summer use shape. Brendan and Gabriel had a great time playing
in the yard with bikes and various toys from our barn.
Sunday Andrew made breakfast and brush hogged the
pasture. Then he and Gabriel headed back
to Vermont while Brian came out from Jamaica Plain with Jack (age 4). By Sunday Barbie was feeling better as the
distortions of the systemic pain killers were wearing off. Now the problem is swelling.
The instructions are to keep the
wrist above the heart to minimize the swelling.
Barbie has been sleeping on the couch, as that enables her to keep the
wrist well elevated all night long.
Still, the swelling remains a problem.
We had a visiting nurse come Tuesday to evaluate our home situation and
arrange for various home therapies. She
agreed with Barbie that the swelling was worrisome, and Barbie has been in
touch with the surgeon’s office to see if this is “normal”.
Meanwhile our local caring network at First Parish Church has
leapt into action as well. We have meals
every other day through June 21st.
People appear to be competing for cooking kudos, as each recipe sounds
more enticing than the last. We also
have rides to our various appointments, as neither of us can drive just now. We also have many willing and helpful hands
in the chorus and among the piano parents, for which we are very grateful.
Who could have dreamed up this plot twist? Barbie likes to say she was tired of me
getting all the attention, but this is a rather extreme way to grab the
spotlight. At this point we are doing
fairly well on our own, as Barbie provides the legs for moving things around
and I provide the hands to open jars and packages that Barbie cannot handle with
just one hand. Fortunately, we had a
stair-chair installed just 6 days before I fell and broke my hip. I am using it regularly, and it does a good
job hauling me up to our bedroom, the showers, and my office.
Since coming home, I have been hobbled by pain in
walking. The prevailing theory is that
this is the result of the treatment I got last Thursday. If the chemo is working, it is killing
myeloma cells in the bone marrow, and the dead cells are the cause of the
pain. Friday I go in for another such
treatment, and we are hoping it causes more pain by killing off yet more myeloma
cells. Meanwhile, we both feel as if we
are one small false move from yet another disaster. Our comfort cushion is the wonderful support
of friends and family – THANK YOU ALL!
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